We are pleased to announce the launch of the latest CPRD Ethnicity Record algorithm derived datasets along with the September 2023 releases of CPRD GOLD and CPRD Aurum. The CPRD Ethnicity Record datasets are comprised of a single derived ethnicity category for each patient in CPRD GOLD and CPRD Aurum.
Are you interested in becoming involved in decisions about using anonymised patient data for health research? Lay input is essential to our work, ensuring that we always see our research activities through the eyes of the patient and the public.
Get involved – We are currently seeking to appoint two Lay Members to the Clinical Practice Research Datalink (CPRD) Research Data Governance (RDG) process. CPRD research data services are delivered by the Medicines and Healthcare products Regulatory Agency (MHRA) with support from the National Institute for Health and Care Research (NIHR), as part of the Department of Health and Social Care.
Tim Williams, Head of Interventional Research for the Clinical Practice Research Datalink (CPRD) at the Medicines and Healthcare products Regulatory Agency (MHRA), discusses how pragmatic data-enabled, decentralised trials like DaRe2THINK are bringing in a new age of more efficient and secure clinical trial recruitment so patients can benefit from cutting-edge treatments when they need them most.
For this recently published paper, researchers from the CPRD team and King’s College London looked at the completeness, agreement, and representativeness of ethnicity recording in the CPRD GOLD, CPRD Aurum, and linked Hospital Episode Statistics (HES) data.
Are you interested in being involved in decisions about using anonymised patient data for health research?