The characteristics of rheumatoid arthritis patient organisation members and online community members with rheumatoid arthritis compared to the general rheumatoid arthritis population

Date of Approval
Application Number
16_032
Technical Summary

The objective of this study is to determine the representativeness of people with rheumatoid arthritis (RA) who are National Rheumatoid Arthritis Society (NRAS) members and HealthUnlocked (HU) community members and visitors. The study population will come from two sources: NRAS members as of 1st January 2015, a survey of HU NRAS community members and visitors to the site, and previous studies that have used NRAS as a source of participants. The comparison group will be people with RA (as of 1st January 2015) identified from the Clinical Practice Research Datalink. For each dataset the number of participants and their characteristics where available (age, gender, region of the UK, types of medication, time since diagnosis, ethnicity, socioeconomic status and employment status) will be tabulated and compared using appropriate statistical tests.

Health Outcomes to be Measured

Rheumatoid arthritis diagnosis

Collaborators

William Dixon - Chief Investigator - University of Manchester
Ruth Costello - Corresponding Applicant - University of Manchester
Benjamin Brown - Collaborator - University of Manchester
John McBeth - Collaborator - University of Manchester

Linkages

Patient Level Index of Multiple Deprivation;Practice Level Index of Multiple Deprivation