The purpose of this study is to determine the number and proportion of patients diagnosed with young onset dementia from this sample primary care database. The health and social care needs of people with young onset dementia are different to those diagnosed at an older age. However, as the age at diagnosis varies for each person, not all people with dementia of a similar age will have similar needs.
The number of people with dementia is published by current age group in England. However, neither age at diagnosis nor the length of time people have lived with their condition is routinely published. Commissioners and service providers need to provide interventions based on the personal needs of the individual rather than through generic age specific services.
This study will inform recommendations to national organisations that lead and develop strategy, policy and guidance on dementia care and local organisations that plan, manage and deliver different stages of clinical and preventive care. The findings will improve the quality of care of patients diagnosed with dementia by providing local estimates of the point prevalence of patients diagnosed with young onset dementia regardless of their current age.
The sex of each patient;
The current age of each patient, measured as the difference between the current year and the patient’s year of birth;
The age at diagnosis of each patient, measured as the difference between the earliest recorded consultation date with a dementia READ/EMIS/SNOMED code and the patient’s year of birth;
The number and proportion of patients in the sample primary care database who have been diagnosed with young onset dementia;
The number of patients in NHS Digital's Recorded Dementia Diagnoses dataset who have been diagnosed with young onset dementia.
Zachary Gleisner - Chief Investigator - Public Health England
Michael Jackson - Corresponding Applicant - Public Health England
Janet Carter - Collaborator - University College London ( UCL )